The Way You Treat Your MS is Crazy, and That's Okay - Multiple ...

It is not putting too fine a point on it to say that, while MS has distinct traces and patterns, each person?s multiple sclerosis is unique unto them. The way MS touches you, the manner in which you respond (or don?t) to medications, your mental outlook on life, the list could go on? All of these are yours and yours alone.

Were someone else to look at the way you ?work? your disease, they might find it 180? from the way they take care of themselves. You might read someone?s comment here and bite your tongue (or don?t) at the way they have decided to live their life with this disease. The point is, it is your life, it is your decision and if there be consequences they are yours with which to contend.

In general I believe that the overwhelming majority of our blog community members see life with MS that way. I also think that many in our community strive to help one another when it comes to things that may or may not have worked for them in the past. I hope that you?ll take what I?m about to say in the vein in which it is offered.

The way you treat your MS is Crazy (and the way I treat mine is crazy too)!

We either take a drug that we think is working (because nothing bad is happening) or we ignore scientific evidence and we decide not to take those same drugs.

We reject or accept ideas, concepts, and treatments for the most diverse of reasons and then do the exact opposite for the very next one in line.

We trick ourselves into believing some things and we try not to believe others.

We allow people close to us to do more damage to us than the disease on some days and we push away those who try to help.

We judge a medication as much for its side-effects as for intended effect.

We comfort ourselves (sometimes) in that fact that it could be worse and we pray like hell that they don?t worsen.

We find ourselves reaching out to one another here in the Life With MS Blog - to people we?ll never meet - and have conversations more intimate than with our spouses, partners, family or doctors.

We don?t ?give in? to using an assistive device because it would mean reliance when that very device could allow us to no longer rely on a number of other things.

We lay awake at night, burdened by the weight of total exhaustion.

We laugh at our symptoms when others cry and we cry for no apparent reason at all.

We stick ourselves with needles when a fear of sharp objects once paralyzed us.

You are a crazy bunch of people; you people living with multiple sclerosis. I sure am glad that you?re out there? I?d hate to have to face the today and tomorrow and the next day with MS as the only crazy bastard in my life!

Well done to you. Well done to all of us! Let us all remember, the next time we?re giving advice on how someone ?should? or what someone ?must? or that someone ?might? that we?re each just a little bit crazy and the person on the other side is too. It makes everything so much easier.

Wishing you and your family the best of health.

Cheers

Trevis

You can also follow me via our Life With MS Facebook page, on Twitter, and in our group on MS Connection.org. Also, check out our bi-monthly MS blog for the United Kingdom, look for our very special new monthly blog for the National MS Society, and don?t forget to check out TrevisLGleason.com.

Source: http://www.everydayhealth.com/blog/trevis-life-with-multiple-sclerosis-ms/the-way-you-treat-your-ms-is-crazy-and-thats-okay/

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Top 10 Windows 2012 Hyper-V Features Explained! Virtualization expert David Dav...

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Source: http://www.facebook.com/TrainSignal/posts/421326074617119

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NBA Final: Oklahoma City Thunder 94 lose to Utah Jazz 109 -- Game Recap

Game #53 ? EnergySolutions Arena ? Salt Lake City, UT ? February 12, 2013 ? 7:00 p.m. (MT) ? TV: ROOT Sports RADIO: 1280 AM/97.5 FM and 1600 AM ESPN Deportes

NBA Regular Season 2012-2013, Game 53:

Oklahoma City Thunder 94 at Utah Jazz 109

#OKCatUTA Game Stream -- Welcome To Loud City (SB Nation) -- Thunder at Jazz coverage

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The Important Information:

That's in eastern standard time -- so back at 6:21 Utah time I had to come out there and put my faith in my team, and my team delivered. Point guard? Schmoint guard. The Jazz got it done against GOLD MEDAL OLYMPIAN Russell Westbrook with Jamaal Tinsley (6 points, 6 assists, 4 steals), Earl Watson (6 points, 5 assists, 4 rebounds), and Alec Burks (13 points, 5 rebounds, 2 assists). It was far from the perfect game from 'the Replacements', but it got the job done against Russ who finished with a very healthy 22 points (8 FTA) and 7 turn overs. Kevin Durant led all scorers with 33, but did not really get much help. By direct contrast, Al Jefferson had 23 and 7, Paul Millsap had 18 and 10, with 6 assists, and the bash brothers were joined by Derrick Favors and his 15, and Kanter's general toughness. (Which sadly isn't on the boxscore -- but he laid down the law after Kevin Durant thought he could punk Alec Burks and shurg off DeMarre Carroll. Kanter stepped up into the scrum and then every Thunder player's testicles retracted back into their abdomens.)

The Thunder lost while shooting 55.9 fg%, the main reason was because the Jazz controlled the glass (38 total rebounds to 26, 16 total offensive rebounds to 7) and thus, controlled the pace.

OKC goes down. Jazz win one. And now we face the Minnesota Timberwolves tomorrow for a chance to go into the All-Star break on a mini-run.

EDIT: Here's the WTLC recap

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Source: http://www.slcdunk.com/2013/2/12/3982566/nba-final-oklahoma-city-thunder-94-lose-to-utah-jazz-109-game-recap

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BoF Daily Digest | Thom Browne?s moment, Virtual NYFW, Gap?s comeback, Fashion circus, Twitter trolls

Thom Browne by Dylan Don | Source: The Talks

Being Thom Browne: His Moment Is Now (NY Times)
??Other designers get cross-pollinated a lot,? Michael Hainey, deputy editor of GQ, said in discussing Mr. Browne. ?You know, suddenly everyone?s showing orange this season because that designer?s fabric person is researching the same fabric as three other people. Thom stands apart. He?s always stood apart.? He is a game-changer, Mr. Hainey added, a designer whose aesthetic, like those of Coco Chanel or Alexander McQueen, is skewed so singularly that it takes some time for a viewer?s eye to adjust.?

From the Virtual Front Row (IHT)
?With the blizzard blowing away my hopes of getting to New York for the early Fashion Week shows, I did what so many other fashion aficionados now do: I picked up my iPad and watched the shows streaming live online??This first view of the winter 2013 collections had some upbeat moments. But I still felt uneasy about the difficulty of analyzing fabrics, recognizing true colors and allowing my own eyes to follow the pieces that interested me.?

At Gap, Sales Gains Are Back in Style (WSJ)
?After struggling for years to get sales moving,?Gap?Inc.?is retaking lost ground??The apparel retailer posted an 8% increase in sales for January, excluding newly opened stores, and completed the 12 months ended Feb. 2 with $15.7 billion in net sales, up 6.4% from $14.7 billion a year earlier. Over the past year, the company?s shares are up nearly 50%.?

The Circus of Fashion?(T Magazine)
?The fuss around the shows now seems as important as what goes on inside the carefully guarded tents. It is as difficult to get in as it always was, when passionate fashion devotees used to appear stealthily from every corner hoping to sneak in to a Jean Paul Gaultier collection in the 1980s. But the difference is that now the action is outside the show?

How Twitter Trolls Took Over Fashion?Week (BuzzFeed)
?Rebecca Minkoff?s 2013 Fall/Winter collection is full of gorgeous clothes with vivid colors and bold prints. The runway show yesterday at New York Fashion Week had a giant screen that showed a livestream of tweets using hashtag #RMFall. The idea was for fashion lovers watching a livestream of the show online to interact with the live show. But when you run an unfiltered livestream of the internet on a 30-foot screen, you never know what you?re going to get.?

Source: http://www.businessoffashion.com/2013/02/bof-daily-digest-thom-brownes-moment-virtual-nyfw-gaps-comeback-fashion-circus-twitter-trolls.html

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Youths with autism spectrum disorder need help transitioning to adult health care

Feb. 12, 2013 ? Health care transition (HCT) services help young people with special health care needs such as asthma or diabetes move from pediatric to adult health care. However, youths with autism spectrum disorder (ASD) have less access to these services, which are designed to prevent gaps in care and insurance coverage. A University of Missouri researcher recommends that the medical community develop HCT services for individuals with ASD as a way to ensure consistent and coordinated care and increase their independence and quality of life.

Nancy Cheak-Zamora, an assistant professor in the Department of Health Sciences in the MU School of Health Professions, found that less than a quarter of youths with ASD receive HCT services compared to about half of youths with other special health care needs. Occasionally, young adults lack health services for several years after they leave the care of their pediatricians, but the gap in care is more harmful for young adults with ASD. In addition to their behavioral and communication difficulties, nearly half of youths with ASD have major co-existing medical conditions, such as seizures, gastrointestinal problems or sleep disturbances. These conditions increase the youths' dependence on the health care system and their need for HCT services, Cheak-Zamora said.

"The health care community is doing a great job getting young people with ASD into therapies," Cheak-Zamora said. "However, once the youths age into adulthood, we stop thinking about how to help them address their medical needs and the new challenges they're facing. Similar to educational, vocational or social transitioning, HCT services are necessary to help individuals with ASD function independently."

Cheak-Zamora said health care providers should discuss the transition to adult health care services when their patients with ASD are about 12 years old. As the youths mature, the physicians can gradually give them more responsibilities for their health care so they can develop independence by the time they turn 18. At that point, Cheak-Zamora recommends that the youths, their caregivers, and their pediatricians and adult primary care physicians meet to discuss the youths' heath needs. This meeting can help reduce the risk of anxiety youths with ASD experience when faced with unfamiliar routines and settings that could come with switching to a new provider, she said.

"Most people with ASD are younger than age 18 right now, so in the next decade we're going to get an influx of adults with ASD," Cheak-Zamora said. "Our health care system is currently unprepared to treat their needs."

Cheak-Zamora, who also teaches in the MU Master of Public Health Program, said health care providers are not always trained to implement HCT services and don't receive sufficient financial reimbursement for the services, which can take time away from appointments that the physicians now use to address patients' immediate health needs.

The study, "Disparities in Transition Planning for Youth with Autism Spectrum Disorder," was published in the journal Pediatrics.

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The above story is reprinted from materials provided by University of Missouri-Columbia.

Note: Materials may be edited for content and length. For further information, please contact the source cited above.

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Journal Reference:

1. N. C. Cheak-Zamora, X. Yang, J. E. Farmer, M. Clark. Disparities in Transition Planning for Youth With Autism Spectrum Disorder. PEDIATRICS, 2013; DOI: 10.1542/peds.2012-1572

Note: If no author is given, the source is cited instead.

Disclaimer: This article is not intended to provide medical advice, diagnosis or treatment. Views expressed here do not necessarily reflect those of ScienceDaily or its staff.

Source: http://feeds.sciencedaily.com/~r/sciencedaily/~3/1P_nJBcAPGs/130212131955.htm

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#SciAmBlogs Monday - Toxic Couch, Evolutionary Psychology, Roundworms, Tubenosed seabirds, Pro-Vaccine Communication, and more.

By Bora Zivkovic?| February 11, 2013 |??

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Bora Zivkovic is the Blog Editor at Scientific American, chronobiologist, biology teacher, organizer of ScienceOnline conferences and editor of Open Laboratory anthologies of best science writing on the Web. Follow on Twitter @boraz.

More??

Bora Zivkovic is the Blog Editor at Scientific American, chronobiologist, biology teacher, organizer of ScienceOnline conferences and editor of Open Laboratory anthologies of best science writing on the Web. Follow on Twitter @boraz.

More??

#SciAmBlogs Monday ? Toxic Couch, Evolutionary Psychology, Roundworms, Tubenosed seabirds, Pro-Vaccine Communication, and more.

About the Author: Bora Zivkovic is the Blog Editor at Scientific American, chronobiologist, biology teacher, organizer of ScienceOnline conferences and editor of Open Laboratory anthologies of best science writing on the Web. Follow on Twitter @boraz.

More??

The views expressed are those of the author and are not necessarily those of Scientific American.

Source: http://rss.sciam.com/click.phdo?i=2d79a7315ed01f884582ee647ef05950

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iMore Editors' Choice: Spaceteam, Elago M2 dock, Moviegram, and more

Every week, the editors and writers at iMore carefully select some of our favorite, most useful, most extraordinary apps, accessories, gadgets, and websites. This week's selections include a few games, an Apple service that is easy to take for granted, an awesome iPhone dock, and a fitness app.

iCloud - Chris Oldroyd

This week I have chosen a built in service provided by Apple that up until recently I totally took for granted. This week, iCloud totally saved my bacon after a disastrous problem with a jailbreak app update rendered my iPhone 5 unusable, first thing in the morning, 60 minutes before heading to work.

I am a casual jailbreaker, I did the jailbreak a couple of days after it was released and all I had installed was Lockinfo and BiteSMS. They both had updates that morning and after the updates, something went seriously wrong. The iPhone 5 restarted and the screen was all distorted with multi colors everywhere and the actual iPhone home screen was in the top corner a quarter of its normal size; it was all a bit weird to say the least.

I managed to get into the Settings and initiate the Erase All Content and Settings function but that wouldn?t complete so I had to do a complete restore via iTunes on my PC. I then ran out of time and had to leave for my meeting. Thankfully, I had all of my apps and settings backed up to iCloud and by using a MiFi wireless network in my car I managed to get all of my apps, settings, contacts and pictures restored on route and my iPhone 5 was back to normal just before I got to the meeting?..what a relief!

iCloud is so underrated, it works in the background backing up your device every night when it?s connected to power and WiFi and is a real life saver when something goes wrong like it did for me. I have learned my lesson with jailbreaking for now at least ad I am so grateful to iCloud for making the whole process of getting things back to normal as painless as possible!

Moviegram - Joseph Keller

Moviegram is a great way to look up movies when you?re trying to decide which one you go see. By pulling in ratings from three different sources, Rotten Tomatoes, Metacritic, and IMDb, Moviegram can give you a comprehensive picture on whether or not a movie is worth seeing. You can either search for movies or select them from an available list. Each movie?s page will display basic information such as a synopsis, the cast, and a trailer if one is available. Tap on a cast member to see their other films. Moviegram is a universal app, and available for free, with a $0.99 in-app purchase to remove the ads.

• Free - Download Now

Elago M2 dock for iPhone and iPad - Ally Kazmucha

I've been on the hunt for a dock for my iPhone 5 ever since Apple didn't release one. I'm not a fan of cases so I've never had a problem with the stock Apple version. After coming up empty handed several times, I finally found one that looked like not only would it work for my iPhone, but my iPad mini and regular sized iPad as well, and that was the Elago M2.

When you spend as much time as I do with apps and reviewing them, it's nice to dock your iPhone or iPad next to your computer so you don't have to keep picking it up time and again to view something. I've found it supports any device in any orientation extremely well. The Elago M2 dock is not only versatile, but super sharp looking. It comes in both black and silver so regardless what iPhone or iPad you have, you'll have one that matches. It's also a lot cheaper than some options out there.

The only issue I've found is that the back is flat metal which made me a little nervous when it comes to scratching. I didn't have any issues but I also easily remedied that by sticking a small rubber circle on the back to add some extra cushion. Not necessary but a cheap way to add a little extra padding and grip. If you're a dock fan and haven't found a perfect one yet, I'd highly recommend checking out the Elago M2.

• $25.00 - Buy Now

Metal Slug 2 - Chris Parsons

If you're looking for a run-and-gun action shooter, then there is nothing really better than the classic Metal Slug. Unless of course, you're speaking of Metal Slug 2! Ported from the original NEOGEO, Metal Slug 2 is builds off of the classic while adding some new great features into the mix called "Mission Mode". New characters, new weapons and more will keep you pounding away at Metal Slug 2. It's $3.99 right now but it has tremendous replay value.

• $3.99 - Download Now

Spaceteam - Rene Ritchie

I was sitting at a party at Macworld|iWorld 2013, minding my own business, when Arnold Kim from MacRumors broke out Spaceteam and began to play it with some of the designers and game developers there. Everything went straight to hell from there.

Here's why -- Spaceteam is a multiplayer game where you connect two iOS devices over a shared Wi-Fi network, or a direct Bluetooth connection, and then go into co-op chaos. The goal is to take your ship to collective warp, and you're given instructions -- convoluted, gobbledegook instructions -- on how to do so, but the buttons you have to press and levels you have to adjust might be on your device? or they might be on someone else's.

And so the yelling begins. Soon everyone is barking out directions, hunting furiously to act on what they see, and what's being screamed at them, in an effort to get to hyperspace.

It gets faster and more furious as you go on, and the interface starts falling apart on you.

It's not pretty. But it's pretty awesome.

• Free - Download now

Two Hundred Situps - Leanna Lofte

Three weeks ago, I gave birth to my second daughter and it's time for me to get back into shape. One of the big problem areas is my core, so I've turned to Two Hundred Situps to help get toned up. I've only started using it today, but I've gone through the One Hundred Situps app by the same developer and it was great.

The way Two Hundred Situps works is that you take an initial "test" which is simply to do as many situps as you can. The app then develops a program for you that will have you doing 200 consecutive situps in six weeks -- and all it takes is 30 minutes a week!

Considering it's the end of Exercise Week in Mobile Nations Fitness Month, now is the perfect time to pick this one up!

• $0.99 for iPhone - Download now
• Free for iPad - Download now

Your choice?

Now that we've chosen our favorites for the week, we want to hear yours! Did you pick up a killer app, accessory, or game this week? Let us know in the comments below!

Source: http://feedproxy.google.com/~r/TheIphoneBlog/~3/pNJppyN-5v8/story01.htm

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